Tina’s Story: How Monthly Support Fuels Research

We are honored to share Tina’s story with you today — a story of loss, perseverance, and the kind of quiet hope that keeps so many in this community going.

Tina and her husband smile on a rocky overlook at Grand Canyon, wearing hiking hats and backpacks with red canyon cliffs behind them.“I lived a very full and active life—until ME/CFS entered it. Before becoming ill, I played tennis, backpacked throughout the Grand Canyon, ran long-distance mountain races, and enjoyed a busy life with my husband and our four children. When ME/CFS hit, all of that came to a sudden stop.

I developed overwhelming fatigue, brain fog, painful burning and crawling nerve sensations, and a constant feeling of being unwell. I saw many doctors, including specialists at the Mayo Clinic, but no one could tell me what was wrong. For a long time, I felt lost and without answers—an experience so many in this community know all too well.

After more than 20 years of living with this illness, I’m grateful to say that I can now function at a higher level than I once could. I still live with daily symptoms, but recently I was able to hike again—something I never would have expected. I share this to offer gentle hope that change is possible, even when it comes slowly and in ways that are unique to each person.

I chose to become a Hope Builder for Open Medicine Foundation (OMF) because I trust their science, their leadership, and their unwavering commitment to ending ME/CFS. This disease takes so much from so many, and OMF is working every day to change that reality. Monthly giving allows this critical research to continue steadily and sustainably—and it is one meaningful way we can help, even on the hardest days.

My heart is with everyone living with ME/CFS. I hold hope that answers and effective treatments are coming—and I am profoundly thankful to OMF and to every supporter helping move this work forward.”

With hope,

~ Tina Caskey, age 67, Hope Builder

We are honored to share Tina’s story with you today — a story of loss, perseverance, and the kind of quiet hope that keeps so many in this community going.

Tina and her husband smile on a rocky overlook at Grand Canyon, wearing hiking hats and backpacks with red canyon cliffs behind them.

“I lived a very full and active life—until ME/CFS entered it. Before becoming ill, I played tennis, backpacked throughout the Grand Canyon, ran long-distance mountain races, and enjoyed a busy life with my husband and our four children. When ME/CFS hit, all of that came to a sudden stop.

I developed overwhelming fatigue, brain fog, painful burning and crawling nerve sensations, and a constant feeling of being unwell. I saw many doctors, including specialists at the Mayo Clinic, but no one could tell me what was wrong. For a long time, I felt lost and without answers—an experience so many in this community know all too well.

After more than 20 years of living with this illness, I’m grateful to say that I can now function at a higher level than I once could. I still live with daily symptoms, but recently I was able to hike again—something I never would have expected. I share this to offer gentle hope that change is possible, even when it comes slowly and in ways that are unique to each person.

I chose to become a Hope Builder for Open Medicine Foundation (OMF) because I trust their science, their leadership, and their unwavering commitment to ending ME/CFS. This disease takes so much from so many, and OMF is working every day to change that reality. Monthly giving allows this critical research to continue steadily and sustainably—and it is one meaningful way we can help, even on the hardest days.

My heart is with everyone living with ME/CFS. I hold hope that answers and effective treatments are coming—and I am profoundly thankful to OMF and to every supporter helping move this work forward.”

With hope,

~ Tina Caskey, age 67, Hope Builder

Hope Builders logo

Tina is one of the Hope Builders — monthly donors whose collective support helps keep OMF’s research moving forward. This March, we’re welcoming 30 new Hope Builders. Will you join us?

No contribution is too small. Every monthly gift — at any level — helps ensure this work never stops.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.


How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669